Retinitis Pigmentosa

Retinitis Pigmentosa is the name given to a group of diseases which affect the light sensitive cells of the retina. The cells on the outer edges of the retina are usually affected; the ones used for peripheral vision and for seeing in the dark. The condition is progressive, but the rate of deterioration is very variable.

Symptoms:

• Night blindness

• Difficulty seeing in dim light

• Difficulty adjusting to changes in light levels

• Glare in bright light

• Loss of side (peripheral) vision

The loss of side vision may progress until only a small central area of sight remains. This is sometimes called tunnel vision. Tunnel vision may make a person appear clumsy. Even though they can see what is directly in front of them, they may bump into objects that are outside of their restricted field of vision.

Retinitis Pigmentosa is an inherited condition. If you have the condition, you should see an eye specialist and supply a detailed history of other affected family members to help the specialist decide which type of Retinitis Pigmentosa is present.

Treatment

There is no treatment at present to either arrest or slow the deterioration. Advances have been made, however, in identifying the genes responsible for different types of Retinitis Pigmentosa. In the not too distant future treatment may be possible by altering genetic make up before birth or later in life.

Living with Retinitis Pigmentosa

• Compensate for tunnel vision by turning the eyes from side to side and up and down to ensure all obstacles are seen.

• Allow time to adjust to different light levels. For example, pause at a doorway when entering a dim interior from outdoors daylight.

• Sunglasses or sun visor may help in bright light.

• Consider using a cane in dim light, particularly during hours of darkness.

For further support or advice please contact:

British Retinitis Pigmentosa Society
PO Box 350
Buckingham
MK18 1GZ
Web: www.brps.org.uk
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
RPS Helpline: 0845 123 2354
Weekdays: 9.30am – 1.00 pm, 1.30 – 5.00 pm and 6.00 – 9.30 pm (except Fridays)