Charles Bonnet Syndrome (CBS) is a condition that affects people with sight loss, causing vivid, visual hallucinations.

While these hallucinations are silent and not linked to any mental health condition, they can be deeply upsetting. The eye is the camera and the brain interprets what is being seen, but as sight is lost, the brain is left with nothing to interpret, so creates images. People may see anything from colours, insects or animals, to figures from the past or whole scenes. These images will vary from person to person and can happen just once or much more frequently.

Scott became a CBS Champion through his work as an Eye Clinic Liaison Officer. He tells us:

I found this eye condition fascinating and wanted to learn more so that I could better support people. I provide advice to my KAB colleagues and collaborate with the UK charity Esme’s Umbrella, which raises awareness and offers support for people with CBS.

Not everyone living with sight loss experiences CBS, but due to fear or stigma, many don’t report their symptoms. “People can be frightened to leave the house or even look out the window,” he says. “It’s emotionally distressing, but understanding it can make a real difference.”

Scott supports KAB clients by identifying triggers, offering coping strategies such as distraction techniques, and signposting to counselling or medication reviews where needed. If you need support or advice, please contact KAB.